Monday, 12 March 2018

Eye to Eye 14 mile walk

This time last week I walked 14 miles with a team of KC supporters from Moorfield's Eye Hospital to the London Eye! It took us 5 hours to complete the walk and was a massive achievement for everyone who participated!

The event was organised by Eye to Eye, run by Moorfield's Eye Charity. Eye to Eye raises funds for pioneering research into eye disorders. Donations raised have helped support vital research projects including studies exploring the genetics of keratoconus and the impact of diabetic retinopathy on a the structure and function of the eye.

Myself and my friend Natalie had a joint Just Giving page and managed to raise a total of £295 so far! We would like to thank everyone who supported us and all fundraising will be going towards the Keratoconus research at Moorfield's Eye Hospital. 

#EyetoEye #TeamMoorfields

 



 














Sunday, 7 January 2018

Happy New Year

I had my yearly check-up at Moorfield's Eye Hospital last week and received the amazing news that my scans were identical to last years! I no longer require a yearly check-up at Moorfield's, unless the opticians notice a sudden change in my eye sight.

I want to thank the ophthalmologist at Specsavers who caught the condition at such an early stage back in 2013! A lot of people I've been in contact with who suffer with KC had been misdiagnosed at their opticians. KC can take control of your life and I feel very lucky that the progression of KC in my eyes has completely stabilised.


Since 2013, I've raised an incredible $31,000. Thanks again to Barbican Insurance, my friends and family for continuing their support. In addition to that I would like to massively thank Aon Insurance for raising nearly £10,000 at their annual Aon Market Lunch in November!!


Reaching just over £40,000 in 4 years is such an achievement! In 2012, the Keratoconus Group only raised around £1,000. Now with the extra support they're able to support those who suffer and help towards the research at Moorfield's.



Friday, 10 November 2017

World Keratoconus Day!

It's that time of year again, November 10th - World Keratoconus Day!

I'm continuing with my support in raising awareness by announcing that since 2014, we've raised a total £22,500 and by end of this year we could reach up to a total of £35,000.

This year fundraising has not only just come from Barbican Insurance but also Aon UK Ltd. Aon is hosting a fundraising event called the Aon London Market Lunch and the guest speaker has the opportunity to select a charity to support each year. The guest speaker is a colleague of mine from Barbican and has kindly selected the Keratoconus Self Help and Support Group! This event is taking place on Friday 24th November and they usually have between 250 and 300 attendees.

The fundraising will continue to help towards the research that's currently going ahead at Moorefield's Eye Hospital.

I will also be hosting a charity Mecca Bingo night with my close friends and family next week to raise awareness!

On a day as important as today it would be amazing to see more donations. Please click on the link below to donate: https://www.justgiving.com/kshsa

Thanks again to everyone who have donated so far and especially to Barbican Insurance for all of their support.

Tuesday, 24 October 2017

Frequently asked questions

At the Keratoconus Group AGM meeting Mr Damian Lake (a consultant ophthalmologist, Corneal and Refractive Surgeon) presented on the different types of treatment available to those who suffer with Keratoconus,


Although I've had CXL and 4 years down the line my eyes still appear to be stable, attending the meeting and listening to the presentation made me feel more relaxed in case I need further treatment in the future.


I feel that the questions asked would be frequently asked by others who suffer and would be good to publish.


Please see below the questions asked and responses from Mr Damian Lake:


  • How long will CXL treatment work for? There is insufficient evidence to answer this at present, but when we looked at our figures only 8% of people required crosslinking within 5 years. I would say for most keratoconus, it is a one time treatment.
  • Can CXL treatment be repeated, if so how many times? Yes cross linking can be repeated, there is no reason it could not be repeated multiple times provided that there is sufficient corneal thickness.
  • What other treatments are available? We also provide intracorneal ring placement with femtosecond laser channel creation, femtosecond laser anterior lamellar cornea graft, femtosecond grafts and phakic intraocular lenses (implantable contact lens, artisan lens) and in some cases pinhole intraocular lenses.
  • Are there risks to these treatments? Yes all treatments have risks, including visual loss, infection, failure. The relative risk will depend upon the treatment and the patients circumstance.
  • Can astigmatism be improved? Yes there are various methods to improve astigmatism. The treatment selected would depend upon whether the astigmatism is regular or irregular, and its magnitude. For low level astigmatism, excimer laser combined with CXL maybe an option. Higher levels may require combination treatments and will vary case by case.

Monday, 16 October 2017

Speaking to those who suffer!



On Saturday 14th October I attended the Keratoconus Group AGM meeting at Moorfields. These meetings are held twice a year and a great opportunity to find out the different treatments available, ask questions and to meet others that suffer with KC.

I learnt that there is no way to track the progression of KC and each individual who suffers is effected differently.

There is no better place to go other than Moorfields! I highly recommend them for their support, consultants and variety of treatments available. Other hospitals don't always offer all treatments for those who are early stages of KC.

Speaking to others, I've realised even though there is a support group, they found it difficult to find the different treatments available and to speak to others in the same situation. Social media is huge in today's society and we need to take that as an opportunity for raising awareness and coming together to share our experiences.

We're all individuals but we're in it together to raise awareness!





















Friday, 25 August 2017

New Story Alert!

I've posted a new story, which is from a member of the Keratoconus Self Help Association (KC Group). I found this story very touching and even though David was diagnosed in 1972, I found that I can relate to some parts of his story, i.e. sensitive to light and astigmatism.

These stories make you realise how important it is to talk to others who suffer and together, we will continue supporting each other, spreading the awareness and raise money!

A great quote from David "Life is a sandstone, it either grinds you down or sharpens you up, depending on the stuff you are made of."

Please take a few minutes to read David Gable's story.

Friday, 23 June 2017

Back up and running



The last few months have been a little hectic and I haven't had the chance to post updates on my blog.

I've also been having issues signing into my Gmail account, so I apologise to those that I haven't responded to!

I'm now back up and running and will be responding to all emails.

I also hope to arrange another fundraising event this year so look out for the posts!