Given the world we’re currently living in and not knowing when normality will be back, David Gable (Chairman of the Keratoconus Self-Help and Support Association), organised a Zoom call in June 2020.
There were only 6 of us, but we wanted to see how it would go. This was to replace the committee meetings that were taking place at Moorfields. We didn’t want the support network to disappear because we were in the middle of a pandemic and this was the time more support than ever was needed.
The first call was a success, so David organised another in August 2020 and started advertising them via the website. There were at least double the amount of attendees the second time round and this is when we realised there was a big interest.
This led on to us arranging these Virtual Coffee Meetings monthly with a topic focus on each call. I then started advertising the calls via Instagram and from this we have found more KC sufferers looking for help!
So far we have hosted calls to discuss ‘Ghosting’, Help at Work and Collagen Cross Linking (CXL).
Anne Klepacz (Secretary of the Keratoconus Self-Help and Support Association) kindly typed up some great notes from the last two Virtual Coffee Meetings, which I will publish in separate posts.
If you were unable to attend these calls, we hope these notes are helpful. We are also open to topic ideas, so please get in touch if you need any support from us!